Love is the most excellent way

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Crohn's Disease

« Previous Entries

Adding Imuran

July 1st, 2008  |  by Helen  |  published in Crohn's Disease, General updates

I saw my doctor yesterday to discuss how the Remicade is going.
Her opinion was that the Remicade is somewhat helpful but not helpful enough by itself. Her recommendation was to add another medication which acts differently from Remicade until my symptoms are under control, then go back to just one medication for maintenance. She thought [...]

4 weeks on Remicade

May 31st, 2008  |  by Helen  |  published in Crohn's Disease, General updates

Two weeks ago I was ready to give up on it because I thought it always took effect in the first two weeks, if it’s going to work.
But then I heard it can take longer and in the last week I’ve been feeling a bit better. So maybe it is helping after all. I was [...]

The first infusion went ok

May 2nd, 2008  |  by Helen  |  published in Crohn's Disease, General updates

I was a little nervous this morning but the infusion went fine once they had succeeded in setting up the IV. On my way to the doctor’s office I remembered I tend to have trouble with those and sure enough, that happened again today.
After the two nurses in the doctor’s office had three unsuccessful [...]

My biologic therapy begins tomorrow

May 1st, 2008  |  by Helen  |  published in Crohn's Disease, General updates

A year ago I hadn’t even heard of ‘biologic therapy’. Tomorrow I’m starting treatment this way since my Crohn’s Disease isn’t responding to ‘conventional therapy’.
A month ago my doctor decided I should go on Remicade based on the condition I’m in. My symptoms are inconvenient rather than dishabilitating, but they’re at a level where [...]

Approved for Remicade

April 28th, 2008  |  by Helen  |  published in Crohn's Disease, General updates

My doctor’s office called the insurance company this morning and as a result the insurance company said I’m now approved for Remicade. I was very pleased to hear that.
My doctor’s office said they’ll schedule the first infusion once they have the approval in writing.

My insurance company seems to think I have Rheumatoid Arthritis

April 26th, 2008  |  by Helen  |  published in Crohn's Disease, General updates

I’m still waiting for the insurance company to decide whether they’ll pay for me to go on Remicade.
The medical review unit’s most recent update to my file seems to indicate they think I have Rheumatoid Arthritis. Can it be possible that they don’t know my diagnosis???
On Wednesday they added a note to my file [...]

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"Have a heart that never hardens, a temper that never tries, and a touch that never hurts." (Charles Dickens)

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